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Introduction

This blog is intended to provide information and updates on Beckett’s (and our) journey with hypoxic ischemic encephalopathy (HIE) and Currarino’s Syndrome and how we are doing as a family of three. More than that, it is a way for us, Beckett’s parents, to share and process what we’ve been through as a family. Honest feelings and emotions will be shared. We think and hope that it will be therapeutic in some ways for us, and perhaps for others.

Originally, we wanted to start a blog as a way to keep family and close friends up to date, but have decided to allow the site to be public. Maybe it will bring someone going through a similar situation some comfort in the future. Feel free to share the site or my contact info with others you may know going through something similar, if it might bring them comfort.

I guess it's probably also worth noting that we often call Beckett "Little Bee", hence the name of the blog! 

This blog is written by Mom (Chantale). It is edited and reviewed by Dad (Keith) and Melanie (a.k.a. Aunty Mommy). 




Disclaimer: 

1. This blog is not intended to provide any medical information, recommendations, advice, or diagnoses. Any medical information described is based on our best recollection and understanding as non-medical people…

2. At no point in this blog is my intent to hurt anyone’s feelings or make people feel guilty or bad about things done or said. I’ve written a true reflection of my feelings through this process, but I know our friends and family have always had our best interest at heart.

Comments

  1. Aunty MelNovember 24, 2023 at 10:25 PM

    I’m so proud of you for sharing this story with us. And I’m so proud of Little Bee for how far he’s come in such a short time.

    ReplyDelete
  2. Roy BranderNovember 25, 2023 at 1:42 PM

    Joanne passed me the address here. Many thanks for sharing. Frustrating to want so much to help, and so little we can do. But any support you can name, just name it. I'll be following your journey here, always nearby.

    ReplyDelete
  3. Kristine FletcherNovember 25, 2023 at 9:30 PM

    Beckett is not the only one who deserves the monicker of “the brave”. I so respect and admire you for sharing this story with the world for your sake and everyone else who can benefit ❤️

    ReplyDelete
  4. Auntie LeanneNovember 26, 2023 at 3:40 PM

    I couldn't be more proud of you Chantale, or of Keith or my sweet sweet nephew. Thank you for your honesty and vulnerability in sharing this. I am in awe of your bravery and strength-- now and throughout this journey-- and I am so proud of you. You're an amazing mom to sweet B and I love you all so much.

    ReplyDelete
  5. Great Auntie SusieNovember 29, 2023 at 4:18 PM

    There’s a saying that you don’t know how strong you are until you have to be and my god Chantale; you, Keith and Beckett embody that to the max. As I’ve said, Beckett is SO lucky to have you and Keith as parents as I’ve witnessed first hand how deep your love and devotion is and how that devotion is evident in all the gains Beckett has made since his birth. I do believe he will continue to flourish especially with your unwavering care and for certain, Beckett will teach all of us so much about life and love, as do his amazing parents.

    ReplyDelete

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