Back in October, when we were first told that Beckett was at a high risk of developing cerebral palsy, we were told that because he wasn't "medically complex", AHS could only offer physio through the Pediatric Rehabilitation Centre (PCR). We were also told that the referral itself would take at least 6 weeks, and the sessions would be every 2 weeks (optimistically) and many of them would be through Zoom. To be quite frank: this was, and is, total crap. I read a book when Beckett was in the NICU called "The Boy Who Could Run But Not Walk" - I won't summarize the book here, but it's written by a neonatologist/pediatric neurologist. The book emphasizes, and the author's lifetime work reinforced, that early intervention with therapies (such as physio) is critical in maximizing the outlook for kiddos who are neurodivergent. We were very disappointed that this was all that was able to be offered through our public healthcare to Beckett at such a critical
This blog is intended to provide information and updates on Beckett’s (and our) journey with hypoxic ischemic encephalopathy (HIE), Cerebral Palsy (CP), and Currarino’s Syndrome and how we are doing as a family of three. More than that it is also a way for us, Beckett’s parents, to share and process what we’ve been through as a family.