Happy New Year! I meant to create a blog post a few weeks ago to wrap up 2024, but life got busy and here we are. It's been a long time since I've written an update, so I guess there's quite a lot to update you all on. In October, Beckett completed his 3rd ever therapy intensive at Canadian Centre for Development. He continued to work on his independent sitting skills, weight bearing in his arms, his intentional reaching and grabbing. He did really well, and within a few weeks we really started to see his body awareness and strength improve. This is what we've been told from other families that have been through intensives - normally you see the biggest impact about a month after the intensive wraps up. This was certainly true after his 3rd intensive. His posture and strength is so much better than before. We are still constantly fighting his strong extensor thrust that results in him throwing himself backward when sitting, and makes it really difficult for him to hold...
This blog is intended to provide information and updates on Beckett’s (and our) journey with hypoxic ischemic encephalopathy (HIE), Cerebral Palsy (CP), and Currarino’s Syndrome and how we are doing as a family of three. More than that it is also a way for us, Beckett’s parents, to share and process what we’ve been through as a family.